Gluten Free Raleigh: Gluten Free Raleigh Quick Reference Guide

Fundraising History

As of Dec 3, 2010
1) Jules Shepard Gluten Free Cooking Class - 2/28/2009 $100 donated to the University of Maryland Center for Celiac Research $400 donated to the National Foundation for Celiac Awareness (NFCA)

2) Gluten Free Raleigh Run/Walk Fundraiser - 6/13/2009 $915 donated to Gluten Free Week 2009 @ Camp Kanata (GIG sponsored camp in Wake Forest)

3) Jules Shepard Gluten Free Cooking Class - 7/12/2009 $300 donated to the University of Maryland Center for Celiac Research

4) GF 101 Class @ Rosie's Plate - 10/3/2009 $175 donated to Gluten Free Week 2010 @ Camp Kanata (GIG sponsored camp in Wake Forest)

5) GF 101 Class @ Rosie's Plate - 1/23/2010 $100 donated to Gluten Free Week 2010 @ Camp Kanata (GIG sponsored camp in Wake Forest)

6) GF 101 Class @ Rosie's Plate - 4/24/2010 $85 donated to Gluten Free Week 2010 @ Camp Kanata (GIG sponsored camp in Wake Forest)

7) Gluten Free Food Drive to benefit The Food Bank of Central & Eastern NC - May 2010 $925

8) GF 101 Class @ Whole Foods - 10/23/2010 $82.50 donated to Gluten Free Week 2011 @ Camp Kanata (GIG sponsored camp in Wake Forest)

Grand Total = $3,082.50

Celiac Disease Stats

16,860 Triangle residents with Celiac Disease
1 out of every 133 Americans (about 3 million people or 1% of population) has Celiac Disease.
97% of Americans estimated to have CD are not diagnosed.
CD has over 300 known symptoms although some people experience none.
Age of diagnosis is key: If you are diagnosed between age 2-4, your chance of getting an additional autoimmune disorder is 10.5%. Over the age of 20, that rockets up to 34%.
30% of the US population is estimated to have the genes necessary for CD.
2.5 babies are born every minute in the USA with the genetic makeup to have CD.
There are 15 states in the US with populations less than the total number of Celiacs in the US.
CD affects more people in the US than Crohn’s Disease, Cystic Fibrosis, Multiple Sclerosis and Parkinson’s disease combined.
500,000 new Celiac diagnoses are expected to occur in the US by 2012 -- thanks to efforts to raise public awareness of the disease.
People with CD dine out 80% less than they used to before diagnosis and believe less than 10% of eating establishments have a 'very good' or 'good' understanding of GF diets.
It takes an average of 11 years for patients to be properly diagnosed with CD even though a simple blood test exists.
The average cost of misdiagnosis is $5,000 - $12,000 per person per year. Improving the time to diagnosis could save the health care system millions of dollars annually in unnecessary medical care.
A recent study by Packaged Facts projects that the sales of GF food will reach $2.63 Billion by 2012. The GF market is also projected to hit $5 Billion by 2015.
GF foods are, on average, 242% more expensive then their non-GF counterparts.
The smallest amount of gluten which has been shown by a biopsy to cause damage to a Celiac is 0.1 gram per day - or 1/48th of a slice of bread.
The Food Allergen Labeling & Consumer Protection Act became law in 2006 allowing for easier reading of food labels for those with CD but the law only requires labeling of wheat. Nearly 5 years later, the FDA still has not finalized what it means to label a product Gluten Free.
12% of people in the US who have Down Syndrome also have CD.
8% of people in the US who have Type 1 Diabetes also have CD.
Among people who have a first-degree relative diagnosed with Celiac, as many as 1 in 22 people may have the disease. First degree relatives should be tested yearly for CD even if previous tests were negative.
There are currently 0 drugs available to treat CD.

~ Last Updated September 13th, 2011
There are many great companies, restaurants, doctors and others who cater to the Gluten Free Community here in Raleigh. I believe in supporting these local companies as much as possible, so here is a single location to find all the information about them. I have added this to the top menu bar so it can be easily found as this post moves off of the first page. If you would like to be included, please email me with your information.

Local Companies
*Brigitte's Bakery - Reviews Web site

de'Lure' Dessert and Bakery - Reviews Web site

The Celiac Cakery - Reviews Web site

Moonlight Bakery - Reviews Web site Facebook
Closed June 2011

*8th Sin Coffee Company - Reviews Web site

*Bella Monica Flatbread Company - Reviews Web site Twitter Facebook

*Bone Suckin’ Sauce - Reviews Web site

*Rosie’s Plate - Reviews Web site Facebook
Closed as of 3/4/2011

Gluten Free Galley - Reviews Web site Twitter Facebook YouTube
*
Twin Cakes Bakery - Reviews Web site Twitter Facebook
Bakery moved to Charlotte but orders still available online

*Juno Nutrition - Reviews Web site Twitter Facebook

*Whole Foods Gluten Free Bakehouse - Reviews Web site

*Custom Choice Cereal - Reviews Web site Twitter

*Sweet Loralee Pastries - Reviews Web site

*Pepper Dog Salsa - Reviews Web site

Happy Tummy Baking Company - Reviews Web site

Local Yogurt - Reviews Web site Twitter Facebook

Restaurants
Gluten Free Raleigh Restaurant Reviews
Raleigh Restaurant Listing
Gluten Free Dining Card

Grocery Stores
*Whole Foods - Reviews Web site GF Product Listing Twitter Facebook

*Earth Fare - Reviews Web site GF Product Listing Twitter

*Harmony Farms - Reviews Web site GF Product Listing
Cafe Harmony - Reviews Web site

*Trader Joe's - Reviews Web site GF Product Listing

*Kroger - Reviews Web site GF Product Listing

*Lowes Foods - Reviews Web site GF Product Listing

Health Network

Other
*Support Groups
Greater North Raleigh Celiac Support Group - Email Web site
Raleigh Cel-Kids Support Group - Email Web site
NC FACES Support Group - Reviews Email Web site

*Camp Kanata – Gluten Free Week

*Carolina Hurricanes

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