Thursday, October 23, 2008

Celiac Disease Awareness Month: Celiac Disease by the Numbers

Here is some information you can share with others while you are raising awareness this month. Some of these numbers are pretty shocking. I've also added these facts to the right hand side of this blog and will continue to add to them as I find more.

Celiac Disease by the Numbers
  • 1 out of every 133 Americans (about 3 million people) has CD.
  • 97% of Americans estimated to have CD are not diagnosed.
  • CD has over 300 known symptoms although some people experience none.
  • Age of diagnosis is key: If you are diagnosed between age 2-4, your chance of getting an additional autoimmune disorder is 10.5%. Over the age of 20, that rockets up to 34%.
  • 30% of the US population is estimated to have the genes necessary for CD.
  • 2.5 babies are born every minute in the USA with the genetic makeup to have CD.
  • There are 15 states in the US with populations less than the total number of Celiacs in the US.
  • CD affects more people in the US than Crohn’s Disease, Cystic Fibrosis, Multiple Sclerosis and Parkinson’s disease combined.
  • 500,000 new Celiac diagnoses are expected to occur in the US by 2012 -- thanks to efforts to raise public awareness of the disease.
  • People with CD dine out 80% less than they used to before diagnosis and believe less than 10% of eating establishments have a 'very good' or 'good' understanding of GF diets.
  • It takes an average of 11 years for patients to be properly diagnosed with CD even though a simple blood test exists.
  • The average cost of misdiagnosis is $5,000 - $12,000 per person per year. Improving the time to diagnosis could save the health care system millions of dollars annually in unnecessary medical care.
  • The US Department of Agriculture projects that the GF industries revenues will reach $1.7 Billion by 2010.
  • GF foods are, on average, 242% more expensive then their non-GF counterparts.
  • The Food Allergen Labeling & Consumer Protection Act became law in 2006 allowing for easier reading of food labels for those with CD. What took so long?
  • The smallest amount of gluten which has been shown by a biopsy to cause damage to a Celiac is 0.1 gram per day - or 1/48th of a slice of bread.
  • 12% of people in the US who have Down Syndrome also have CD.
  • 6% of people in the US who have Type 1 Diabetes also have CD.
  • Among people who have a first-degree relative diagnosed with Celiac, as many as 1 in 22 people may have the disease.
  • There are currently 0 drugs available to treat CD.


Anonymous said...

Where I come from (Oxford, England) the rate is 1 in 80, not 1 in 133. I wonder if celiac disease is massively underdiagnosed in USA due to many not having health insurance? In which case, grocery stores and restaurants should be doing a lot more to decrease or eliminate gluten from their menus.

I was eating at a gluten-free restaurant in NYC the other day (Risotteria) at which no one around me seemed aware that the place was gluten-free. They just loved the pizza. Fabulous!

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