Gluten Free Raleigh: Celiac Disease Awareness Month Activity

Fundraising History

As of Dec 3, 2010
1) Jules Shepard Gluten Free Cooking Class - 2/28/2009 $100 donated to the University of Maryland Center for Celiac Research $400 donated to the National Foundation for Celiac Awareness (NFCA)

2) Gluten Free Raleigh Run/Walk Fundraiser - 6/13/2009 $915 donated to Gluten Free Week 2009 @ Camp Kanata (GIG sponsored camp in Wake Forest)

3) Jules Shepard Gluten Free Cooking Class - 7/12/2009 $300 donated to the University of Maryland Center for Celiac Research

4) GF 101 Class @ Rosie's Plate - 10/3/2009 $175 donated to Gluten Free Week 2010 @ Camp Kanata (GIG sponsored camp in Wake Forest)

5) GF 101 Class @ Rosie's Plate - 1/23/2010 $100 donated to Gluten Free Week 2010 @ Camp Kanata (GIG sponsored camp in Wake Forest)

6) GF 101 Class @ Rosie's Plate - 4/24/2010 $85 donated to Gluten Free Week 2010 @ Camp Kanata (GIG sponsored camp in Wake Forest)

7) Gluten Free Food Drive to benefit The Food Bank of Central & Eastern NC - May 2010 $925

8) GF 101 Class @ Whole Foods - 10/23/2010 $82.50 donated to Gluten Free Week 2011 @ Camp Kanata (GIG sponsored camp in Wake Forest)

Grand Total = $3,082.50

Celiac Disease Stats

16,860 Triangle residents with Celiac Disease
1 out of every 133 Americans (about 3 million people or 1% of population) has Celiac Disease.
97% of Americans estimated to have CD are not diagnosed.
CD has over 300 known symptoms although some people experience none.
Age of diagnosis is key: If you are diagnosed between age 2-4, your chance of getting an additional autoimmune disorder is 10.5%. Over the age of 20, that rockets up to 34%.
30% of the US population is estimated to have the genes necessary for CD.
2.5 babies are born every minute in the USA with the genetic makeup to have CD.
There are 15 states in the US with populations less than the total number of Celiacs in the US.
CD affects more people in the US than Crohn’s Disease, Cystic Fibrosis, Multiple Sclerosis and Parkinson’s disease combined.
500,000 new Celiac diagnoses are expected to occur in the US by 2012 -- thanks to efforts to raise public awareness of the disease.
People with CD dine out 80% less than they used to before diagnosis and believe less than 10% of eating establishments have a 'very good' or 'good' understanding of GF diets.
It takes an average of 11 years for patients to be properly diagnosed with CD even though a simple blood test exists.
The average cost of misdiagnosis is $5,000 - $12,000 per person per year. Improving the time to diagnosis could save the health care system millions of dollars annually in unnecessary medical care.
A recent study by Packaged Facts projects that the sales of GF food will reach $2.63 Billion by 2012. The GF market is also projected to hit $5 Billion by 2015.
GF foods are, on average, 242% more expensive then their non-GF counterparts.
The smallest amount of gluten which has been shown by a biopsy to cause damage to a Celiac is 0.1 gram per day - or 1/48th of a slice of bread.
The Food Allergen Labeling & Consumer Protection Act became law in 2006 allowing for easier reading of food labels for those with CD but the law only requires labeling of wheat. Nearly 5 years later, the FDA still has not finalized what it means to label a product Gluten Free.
12% of people in the US who have Down Syndrome also have CD.
8% of people in the US who have Type 1 Diabetes also have CD.
Among people who have a first-degree relative diagnosed with Celiac, as many as 1 in 22 people may have the disease. First degree relatives should be tested yearly for CD even if previous tests were negative.
There are currently 0 drugs available to treat CD.

Monday, October 13, 2008

Celiac Disease Awareness Month Activity

The following is an excerpt from the CSA's Awareness Month Packet about awareness raising ideas for the Month of October. Looks like CSA is sponsoring a Student Essay contest with prizes. If you have a child with Celiac or are a student yourself, see below for more information. If you are a high school student, this could be good for your resume as you prepare to apply for college.

THE CSA STUDENT ESSAY CONTEST
“CELEBRATING MY TRIUMPH OVER CELIAC DISEASE”

Celebrate! Share your Celiac triumphs!
Plan now to enter the CSA Student Essay Contest!
Students are offered the opportunity to celebrate their triumphs over Celiac disease through an essay contest. Students from K through college are invited to write an essay on the theme, Celebrating My Triumph over Celiac Disease.” The contest is open to students diagnosed with Celiac disease or students who are members of a family dealing with Celiac disease. The essay should be either written in ink or typed and approximately 500 words or less.

In the right hand corner include:
• Name
• Address
• City
• State
• Phone number
• Parent/Guardian Name
• CSA local chapter name/number
• School
• Grade
• Age (if under 21)
• Entry date

The essay will be evaluated on the six traits of writing: voice, ideas, word choice, organization, sentence fluency and conventions. It should include an introduction, topic development, support and structure. Awards and prizes will be given in appropriate divisions including grades K-4/elementary, 5-8/middle school, 9-12/high school, and college. With permission, winning essays will be printed in Lifeline and on the CSA website.

The essays will be judged by a panel from the National Council of Teachers of English (NCTE), Nebraska Affiliate-the Nebraska English Language Arts Council (NELAC) and CSA staff. All essays will become the property of CSA; submission of an essay constitutes permission for use by CSA. Entries will be accepted at any time until the contest closes on December 1. Winners will be notified and announced in CSA publications and on the website.

Mail essays to:
CSA Student Essay Contest 2007
PO Box 31700
Omaha, NE 68131-0700

Or
Email essays to:
executivedirector@csaceliacs.org

Please let me know if you enter and good luck!

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Monday, October 13, 2008

Celiac Disease Awareness Month Activity

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