Gluten Free Raleigh: Gluten Free Product Listing from CSA

Fundraising History

As of Dec 3, 2010
1) Jules Shepard Gluten Free Cooking Class - 2/28/2009 $100 donated to the University of Maryland Center for Celiac Research $400 donated to the National Foundation for Celiac Awareness (NFCA)

2) Gluten Free Raleigh Run/Walk Fundraiser - 6/13/2009 $915 donated to Gluten Free Week 2009 @ Camp Kanata (GIG sponsored camp in Wake Forest)

3) Jules Shepard Gluten Free Cooking Class - 7/12/2009 $300 donated to the University of Maryland Center for Celiac Research

4) GF 101 Class @ Rosie's Plate - 10/3/2009 $175 donated to Gluten Free Week 2010 @ Camp Kanata (GIG sponsored camp in Wake Forest)

5) GF 101 Class @ Rosie's Plate - 1/23/2010 $100 donated to Gluten Free Week 2010 @ Camp Kanata (GIG sponsored camp in Wake Forest)

6) GF 101 Class @ Rosie's Plate - 4/24/2010 $85 donated to Gluten Free Week 2010 @ Camp Kanata (GIG sponsored camp in Wake Forest)

7) Gluten Free Food Drive to benefit The Food Bank of Central & Eastern NC - May 2010 $925

8) GF 101 Class @ Whole Foods - 10/23/2010 $82.50 donated to Gluten Free Week 2011 @ Camp Kanata (GIG sponsored camp in Wake Forest)

Grand Total = $3,082.50

Celiac Disease Stats

16,860 Triangle residents with Celiac Disease
1 out of every 133 Americans (about 3 million people or 1% of population) has Celiac Disease.
97% of Americans estimated to have CD are not diagnosed.
CD has over 300 known symptoms although some people experience none.
Age of diagnosis is key: If you are diagnosed between age 2-4, your chance of getting an additional autoimmune disorder is 10.5%. Over the age of 20, that rockets up to 34%.
30% of the US population is estimated to have the genes necessary for CD.
2.5 babies are born every minute in the USA with the genetic makeup to have CD.
There are 15 states in the US with populations less than the total number of Celiacs in the US.
CD affects more people in the US than Crohn’s Disease, Cystic Fibrosis, Multiple Sclerosis and Parkinson’s disease combined.
500,000 new Celiac diagnoses are expected to occur in the US by 2012 -- thanks to efforts to raise public awareness of the disease.
People with CD dine out 80% less than they used to before diagnosis and believe less than 10% of eating establishments have a 'very good' or 'good' understanding of GF diets.
It takes an average of 11 years for patients to be properly diagnosed with CD even though a simple blood test exists.
The average cost of misdiagnosis is $5,000 - $12,000 per person per year. Improving the time to diagnosis could save the health care system millions of dollars annually in unnecessary medical care.
A recent study by Packaged Facts projects that the sales of GF food will reach $2.63 Billion by 2012. The GF market is also projected to hit $5 Billion by 2015.
GF foods are, on average, 242% more expensive then their non-GF counterparts.
The smallest amount of gluten which has been shown by a biopsy to cause damage to a Celiac is 0.1 gram per day - or 1/48th of a slice of bread.
The Food Allergen Labeling & Consumer Protection Act became law in 2006 allowing for easier reading of food labels for those with CD but the law only requires labeling of wheat. Nearly 5 years later, the FDA still has not finalized what it means to label a product Gluten Free.
12% of people in the US who have Down Syndrome also have CD.
8% of people in the US who have Type 1 Diabetes also have CD.
Among people who have a first-degree relative diagnosed with Celiac, as many as 1 in 22 people may have the disease. First degree relatives should be tested yearly for CD even if previous tests were negative.
There are currently 0 drugs available to treat CD.

Wednesday, October 8, 2008

Gluten Free Product Listing from CSA

Picked up this little bit of information from the Digestive Health SmartBrief from the American College of Gastroenterology. See my previous post about that here.

The Celiac Sprue Association Gluten-Free Product Listing - 13th Edition is available for pre-publication ordering. Researched and compiled by CSA with input from
manufacturers, vendors, distributors, diet and health professionals, and CSA
members, this essential guide is available as a binder or CD. Become a new CSA
member when ordering and get a 25% discount.

The product listing includes...

-a wide variety of gluten-free products—both store brands and national brands
-descriptions/contact information for businesses specializing in gluten-free products
-expanded glossary of terms
-celiac friendly business listings by state
-call numbers for commercial food and pharmaceutical companies
-Informational sections on label reading, the celiac kitchen, dining and travel, hospital stay preparation and diet self-management

Mine has been ordered and I will let you know what I think of it when it arrives. The original price is $30.

2 comments:

Dirk said...: Can you tell me what the gluten-free product listing CD is like? I have used the book before, but depending on the CD's format maybe I will get that.

I just worry it's a gigantic PDF or something equally painful to use. If it is in some sort of easily searchable/printable format I could go for it. I would want to export pieces to my phone perhaps.

Anyway, if you have used it, can you give me a hint what the CD provides? thanks!

-Carl; November 23, 2009 at 7:37 PM
Zach said...: Carl,
Don't have the CD (have used the book and it is hard to use)... Maybe you could try something online like Juno Nutrition?; November 23, 2009 at 8:30 PM

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Wednesday, October 8, 2008

Gluten Free Product Listing from CSA

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