Tuesday, October 14, 2008

Celiac Disease Awareness Month Controversy

OK - I've been blogging all month about CSA's Celiac Disease Awareness Month. I have heard feedback from several readers emphatically stating that May is actually Celiac Disease Awareness Month. They go on to list a ton of organizations which support May as the actual month. In my honest opinion, it is my belief that we should be promoting awareness every day of every month! Is it easy to live Gluten Free? Are people being correctly diagnosed in a timely fashion by their doctors? Can we go to any restaurant and pick from a GF menu? Unless you know something I don't, the answers are NO. Why is it a big deal to some people if CSA wants to promote October as the month? CSA has been around since 1985 with over 10,000 members and 125 local sponsored chapters. Did I mention that Raleigh's Celiac Support group and Cel-Kids support group are sponsored by the CSA? How about the fact that the CSA is the largest 501(c)(3) non-profit, support, information and referral organization representing the celiac community in the United States?

The point is that there are many national organizations for Celiac Disease (is this good or bad?) and each promotes Celiac Awareness in different ways. I think we should support each of these organizations in whatever activities they take on to promote our disease. We should be thankful for the CSA and all the organizations that exist for CD. Of course it would be nice if there was a consistent effort but at this point we should take what we can get as far as promoting awareness is concerned. I'd like to hear your comments as well so please leave some feedback if you have an opinion on this subject.

Now, on to the Celiac Disease Awareness Month Activity of the day. Or if you prefer, you can do this in May (ha-ha).
Promoting Celiac Disease Awareness Month

We have all heard that “one picture is worth a thousand words.” Everyone looks forward to seeing photos and hearing stories. As a result, this year CSA is sponsoring a photo contest to promote Celiac Disease Awareness Month. Entries will be accepted during the month of October. Entries due December 1st. Capture fun moments and action --- promoting celiac disease awareness --- and demonstrating that individuals diagnosed with celiac disease lead normal lives. Prizes will be awarded, and the winning photos will be prominently featured in Lifeline and on our website. This contest is open to all ages.

Contest Rules:
• All photos must be accompanied by an entry form (see page 20 or download from website)
• Snapshots/collages are welcome/from any event or activity such as summer picnics, fall meetings or CSA Chapter activities
• Pictures should be as high resolution as you can get on your camera
• Photos can be black and white or color
• No limit on photo entries, but each should be accompanied by an entry form
• No larger than 8” X 10”
• Ideally, you should save your picture in the largest size you can
• If you save your photo as a jpeg and email to celiacs@csaceliacs.org, be sure to add that the photo is for the competition. Be sure to include the entry form.
• Be sure you obtain permission from all persons in the photo before you submit
• Winners will be notified after December 1st

Photo Ideas:
• Group meetings/speakers
• Group activities/programs
• Individuals finding success through the “WBRO-Free diet”/CSA CelKids®/Leaders/Families
• Action photos such as a walk-a-thon, bike-a-thon, cooking demo, BBQ, bake off, etc

Send photos and entry forms to:
CSA Photo Contest
PO Box 31700
Omaha, NE 68131-0700
Email photos and entry forms to:
Thanks for reading!


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