Gluten Free Raleigh: Gluten Free Raleigh Dispatch: 11-17-2009

Fundraising History

As of Dec 3, 2010
1) Jules Shepard Gluten Free Cooking Class - 2/28/2009 $100 donated to the University of Maryland Center for Celiac Research $400 donated to the National Foundation for Celiac Awareness (NFCA)

2) Gluten Free Raleigh Run/Walk Fundraiser - 6/13/2009 $915 donated to Gluten Free Week 2009 @ Camp Kanata (GIG sponsored camp in Wake Forest)

3) Jules Shepard Gluten Free Cooking Class - 7/12/2009 $300 donated to the University of Maryland Center for Celiac Research

4) GF 101 Class @ Rosie's Plate - 10/3/2009 $175 donated to Gluten Free Week 2010 @ Camp Kanata (GIG sponsored camp in Wake Forest)

5) GF 101 Class @ Rosie's Plate - 1/23/2010 $100 donated to Gluten Free Week 2010 @ Camp Kanata (GIG sponsored camp in Wake Forest)

6) GF 101 Class @ Rosie's Plate - 4/24/2010 $85 donated to Gluten Free Week 2010 @ Camp Kanata (GIG sponsored camp in Wake Forest)

7) Gluten Free Food Drive to benefit The Food Bank of Central & Eastern NC - May 2010 $925

8) GF 101 Class @ Whole Foods - 10/23/2010 $82.50 donated to Gluten Free Week 2011 @ Camp Kanata (GIG sponsored camp in Wake Forest)

Grand Total = $3,082.50

Celiac Disease Stats

16,860 Triangle residents with Celiac Disease
1 out of every 133 Americans (about 3 million people or 1% of population) has Celiac Disease.
97% of Americans estimated to have CD are not diagnosed.
CD has over 300 known symptoms although some people experience none.
Age of diagnosis is key: If you are diagnosed between age 2-4, your chance of getting an additional autoimmune disorder is 10.5%. Over the age of 20, that rockets up to 34%.
30% of the US population is estimated to have the genes necessary for CD.
2.5 babies are born every minute in the USA with the genetic makeup to have CD.
There are 15 states in the US with populations less than the total number of Celiacs in the US.
CD affects more people in the US than Crohn’s Disease, Cystic Fibrosis, Multiple Sclerosis and Parkinson’s disease combined.
500,000 new Celiac diagnoses are expected to occur in the US by 2012 -- thanks to efforts to raise public awareness of the disease.
People with CD dine out 80% less than they used to before diagnosis and believe less than 10% of eating establishments have a 'very good' or 'good' understanding of GF diets.
It takes an average of 11 years for patients to be properly diagnosed with CD even though a simple blood test exists.
The average cost of misdiagnosis is $5,000 - $12,000 per person per year. Improving the time to diagnosis could save the health care system millions of dollars annually in unnecessary medical care.
A recent study by Packaged Facts projects that the sales of GF food will reach $2.63 Billion by 2012. The GF market is also projected to hit $5 Billion by 2015.
GF foods are, on average, 242% more expensive then their non-GF counterparts.
The smallest amount of gluten which has been shown by a biopsy to cause damage to a Celiac is 0.1 gram per day - or 1/48th of a slice of bread.
The Food Allergen Labeling & Consumer Protection Act became law in 2006 allowing for easier reading of food labels for those with CD but the law only requires labeling of wheat. Nearly 5 years later, the FDA still has not finalized what it means to label a product Gluten Free.
12% of people in the US who have Down Syndrome also have CD.
8% of people in the US who have Type 1 Diabetes also have CD.
Among people who have a first-degree relative diagnosed with Celiac, as many as 1 in 22 people may have the disease. First degree relatives should be tested yearly for CD even if previous tests were negative.
There are currently 0 drugs available to treat CD.

Tuesday, November 17, 2009

Gluten Free Raleigh Dispatch: 11-17-2009

Congrats and Thanks to Jules Shepard for another successful Gluten Free cooking class held this past weekend at the Earth Fare in Raleigh. Jules wrote to let me know the class was a huge success and they raised over $110 for funding Celiac research at the University of Maryland Celiac center. The money was raised during a raffle for a gift basket which included some awesome Custom Choice Cereal (I hope to write about this soon).
Thanksgiving is fast approaching, here are some great resources - Jules Shepard E-book | Rosie's Plate Thanksgiving menu | About.com's write-up (includes how to find a GF turkey and many recipes and tips) | An update on Butterball's gravy packet from The Savvy Celiac | Triumph Dining blogs about Whole Foods' holiday recipes.
An update on the Great Value Brand from Wal-Mart from the Savvy Celiac. Some usually naturally GF items are no longer marked that way - watch out!
Check out an article on an upcoming Celiac Disease lecture over at Duke on Gluten Free Durham.
Here is an update to a previous story I wrote about Elisabeth Hasselbeck's book and plagiarism lawsuit (case was dropped).
Here is an article detailing how families with a lower income can eat GF/CF.
Want to cure your Celiac? Get some hookworms (ahh).
Click here for some information on a recent rumor about Hershey's candy and flour dusting. Be careful what you read on the Internet!
Here is an update from celiac-disease.com about new GF offerings from Progresso. I've seen these recently in the store - thanks AGAIN General Mills!
Domino's Pizza now offering Gluten Free pizza!?! (looks like only in Australia). I'll check this out and see what I can find about the USA.

1 comments:

Zach said...: Domino's Pizza update - I received word from a customer service rep that they have NO plans of offering a GF pizza crust here in the USA anytime soon.

Click here to send in your comments about the topic.

https://info.dominos.com/dominos_pizza/contact.nsf/frmContact?openform; November 18, 2009 at 9:06 AM

Gluten Free Raleigh

Welcome

Subscribe

Contact

Health Network

Local Support Groups

NFCA GREAT Guide

Sponsored Links

Fundraising History

Celiac Disease Stats

Blog Archive

Restaurant Survey

Pages

Tuesday, November 17, 2009

Gluten Free Raleigh Dispatch: 11-17-2009

1 comments:

Post a Comment

Search This Blog

NC vs GSP Lawsuit

Food Allergy Poster

Useful Resources

Hot Topics

Popular Posts

Recent Comments