Gluten Free Raleigh: Gluten Free Raleigh Dispatch: 10-2-2009

Fundraising History

As of Dec 3, 2010
1) Jules Shepard Gluten Free Cooking Class - 2/28/2009 $100 donated to the University of Maryland Center for Celiac Research $400 donated to the National Foundation for Celiac Awareness (NFCA)

2) Gluten Free Raleigh Run/Walk Fundraiser - 6/13/2009 $915 donated to Gluten Free Week 2009 @ Camp Kanata (GIG sponsored camp in Wake Forest)

3) Jules Shepard Gluten Free Cooking Class - 7/12/2009 $300 donated to the University of Maryland Center for Celiac Research

4) GF 101 Class @ Rosie's Plate - 10/3/2009 $175 donated to Gluten Free Week 2010 @ Camp Kanata (GIG sponsored camp in Wake Forest)

5) GF 101 Class @ Rosie's Plate - 1/23/2010 $100 donated to Gluten Free Week 2010 @ Camp Kanata (GIG sponsored camp in Wake Forest)

6) GF 101 Class @ Rosie's Plate - 4/24/2010 $85 donated to Gluten Free Week 2010 @ Camp Kanata (GIG sponsored camp in Wake Forest)

7) Gluten Free Food Drive to benefit The Food Bank of Central & Eastern NC - May 2010 $925

8) GF 101 Class @ Whole Foods - 10/23/2010 $82.50 donated to Gluten Free Week 2011 @ Camp Kanata (GIG sponsored camp in Wake Forest)

Grand Total = $3,082.50

Celiac Disease Stats

16,860 Triangle residents with Celiac Disease
1 out of every 133 Americans (about 3 million people or 1% of population) has Celiac Disease.
97% of Americans estimated to have CD are not diagnosed.
CD has over 300 known symptoms although some people experience none.
Age of diagnosis is key: If you are diagnosed between age 2-4, your chance of getting an additional autoimmune disorder is 10.5%. Over the age of 20, that rockets up to 34%.
30% of the US population is estimated to have the genes necessary for CD.
2.5 babies are born every minute in the USA with the genetic makeup to have CD.
There are 15 states in the US with populations less than the total number of Celiacs in the US.
CD affects more people in the US than Crohn’s Disease, Cystic Fibrosis, Multiple Sclerosis and Parkinson’s disease combined.
500,000 new Celiac diagnoses are expected to occur in the US by 2012 -- thanks to efforts to raise public awareness of the disease.
People with CD dine out 80% less than they used to before diagnosis and believe less than 10% of eating establishments have a 'very good' or 'good' understanding of GF diets.
It takes an average of 11 years for patients to be properly diagnosed with CD even though a simple blood test exists.
The average cost of misdiagnosis is $5,000 - $12,000 per person per year. Improving the time to diagnosis could save the health care system millions of dollars annually in unnecessary medical care.
A recent study by Packaged Facts projects that the sales of GF food will reach $2.63 Billion by 2012. The GF market is also projected to hit $5 Billion by 2015.
GF foods are, on average, 242% more expensive then their non-GF counterparts.
The smallest amount of gluten which has been shown by a biopsy to cause damage to a Celiac is 0.1 gram per day - or 1/48th of a slice of bread.
The Food Allergen Labeling & Consumer Protection Act became law in 2006 allowing for easier reading of food labels for those with CD but the law only requires labeling of wheat. Nearly 5 years later, the FDA still has not finalized what it means to label a product Gluten Free.
12% of people in the US who have Down Syndrome also have CD.
8% of people in the US who have Type 1 Diabetes also have CD.
Among people who have a first-degree relative diagnosed with Celiac, as many as 1 in 22 people may have the disease. First degree relatives should be tested yearly for CD even if previous tests were negative.
There are currently 0 drugs available to treat CD.

Friday, October 2, 2009

Gluten Free Raleigh Dispatch: 10-2-2009

Reminder: Gluten Free 101 Class taught by yours truly tomorrow (10-3) at Rosie's Plate. There are two or three spots left - call Rosie's Plate @ 833-0505 to reserve your spot. Click here for other classes.
Reminder: In just a little over 2 weeks, I'll be presenting my online Food Allergy poster petition to the Raleigh City Council (10/20/09). Please see here for more information and here to sign the petition (almost 400 signatures and counting). Please click here for more information on entering your poster design.
Click here to download a FREE "Thanksgiving 101" e-book from Celiac author and expert, Jules Shepard. The 34 page e-book contains great information on having a great Thanksgiving; including tips, a planning time line and 20 recipes. Valid until October 5th. Use coupon code "thanksgiving" when checking out (a $12.95 value).
I've written in the past about a Gluten Free play-dough called Soy-Yer dough. The founder of that company (a Purdue University senior) named Sawyer Sparks was on the ABC show called Shark Tank this past week. He was seeking an investment of $125,000 for a 25% stake in his company. He ended up getting $300,000 from the Sharks and said he was offered $500,000 from Play-Doh. This is a great sign that the Gluten Free market is extremely viable. FYI - my daughter has been playing with this stuff for 6 months and loves it.
Some updates on the Gluten Free food marketplace - 1,000 new products introduced in 2008 and another 552 through July 20, 2009. General Mills research shows that up to 12% of US households are interested in reducing their Gluten intake.
Check out the new official blog from Bella Monica Gluten Free Flatbread Company - http://www.glutenfreepizza.typepad.com/. A pretty funny post is at the top which shows a video of Lee Tobin (Whole Foods Gluten Free Bakehouse Chief) saying that Bella flatbread's are "Awesome". That's saying something, especially since Lee sells his own frozen pizza crust.
Here is a good article with 10 easy steps on eating successfully Gluten Free at restaurants. Very in depth!
Check out an upcoming meeting (Tuesday, November 3rd) on Food Hypersensitivities/Allergies hosted by the Raleigh District Dietetic Association. The meeting will be held at 5:30pm at Meredith College (101 Ledford Auditorium) and will feature special guest speaker Ellen Karlin, MS, RD from the American Dietetic Association. Please contact Lindsay Hecht if you have any questions about the meeting. $10 fee payable at the door.
An interesting blog post from Twin Cakes Bakery on why they bake the way they do.

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Friday, October 2, 2009

Gluten Free Raleigh Dispatch: 10-2-2009

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