Gluten Free Raleigh: June 13th Run/Walk Fundraiser Update

Fundraising History

As of Dec 3, 2010
1) Jules Shepard Gluten Free Cooking Class - 2/28/2009 $100 donated to the University of Maryland Center for Celiac Research $400 donated to the National Foundation for Celiac Awareness (NFCA)

2) Gluten Free Raleigh Run/Walk Fundraiser - 6/13/2009 $915 donated to Gluten Free Week 2009 @ Camp Kanata (GIG sponsored camp in Wake Forest)

3) Jules Shepard Gluten Free Cooking Class - 7/12/2009 $300 donated to the University of Maryland Center for Celiac Research

4) GF 101 Class @ Rosie's Plate - 10/3/2009 $175 donated to Gluten Free Week 2010 @ Camp Kanata (GIG sponsored camp in Wake Forest)

5) GF 101 Class @ Rosie's Plate - 1/23/2010 $100 donated to Gluten Free Week 2010 @ Camp Kanata (GIG sponsored camp in Wake Forest)

6) GF 101 Class @ Rosie's Plate - 4/24/2010 $85 donated to Gluten Free Week 2010 @ Camp Kanata (GIG sponsored camp in Wake Forest)

7) Gluten Free Food Drive to benefit The Food Bank of Central & Eastern NC - May 2010 $925

8) GF 101 Class @ Whole Foods - 10/23/2010 $82.50 donated to Gluten Free Week 2011 @ Camp Kanata (GIG sponsored camp in Wake Forest)

Grand Total = $3,082.50

Celiac Disease Stats

16,860 Triangle residents with Celiac Disease
1 out of every 133 Americans (about 3 million people or 1% of population) has Celiac Disease.
97% of Americans estimated to have CD are not diagnosed.
CD has over 300 known symptoms although some people experience none.
Age of diagnosis is key: If you are diagnosed between age 2-4, your chance of getting an additional autoimmune disorder is 10.5%. Over the age of 20, that rockets up to 34%.
30% of the US population is estimated to have the genes necessary for CD.
2.5 babies are born every minute in the USA with the genetic makeup to have CD.
There are 15 states in the US with populations less than the total number of Celiacs in the US.
CD affects more people in the US than Crohn’s Disease, Cystic Fibrosis, Multiple Sclerosis and Parkinson’s disease combined.
500,000 new Celiac diagnoses are expected to occur in the US by 2012 -- thanks to efforts to raise public awareness of the disease.
People with CD dine out 80% less than they used to before diagnosis and believe less than 10% of eating establishments have a 'very good' or 'good' understanding of GF diets.
It takes an average of 11 years for patients to be properly diagnosed with CD even though a simple blood test exists.
The average cost of misdiagnosis is $5,000 - $12,000 per person per year. Improving the time to diagnosis could save the health care system millions of dollars annually in unnecessary medical care.
A recent study by Packaged Facts projects that the sales of GF food will reach $2.63 Billion by 2012. The GF market is also projected to hit $5 Billion by 2015.
GF foods are, on average, 242% more expensive then their non-GF counterparts.
The smallest amount of gluten which has been shown by a biopsy to cause damage to a Celiac is 0.1 gram per day - or 1/48th of a slice of bread.
The Food Allergen Labeling & Consumer Protection Act became law in 2006 allowing for easier reading of food labels for those with CD but the law only requires labeling of wheat. Nearly 5 years later, the FDA still has not finalized what it means to label a product Gluten Free.
12% of people in the US who have Down Syndrome also have CD.
8% of people in the US who have Type 1 Diabetes also have CD.
Among people who have a first-degree relative diagnosed with Celiac, as many as 1 in 22 people may have the disease. First degree relatives should be tested yearly for CD even if previous tests were negative.
There are currently 0 drugs available to treat CD.

Tuesday, June 9, 2009

June 13th Run/Walk Fundraiser Update

Race day is fast approaching... so here are a few updates...

The Gluten Free Raleigh Run/Walk Fundraiser to benefit Gluten Free Week at Camp Kanata (GIG sponsored kids camp in Wake Forest, NC) will take place this Saturday, June 13th during the Susan Komen NC Triangle Race for the Cure. The race begins at 9am and our team will be meeting at 830am. Parking and shuttle information from the RBC Center can be found here. A map of the race course can be found here.

A team was created and 15 participants have joined the team (Zach, Jen, Bruce, Chari, Dave, Jayn, Britne, Joey, Tim, Dylan, Rita, Shelley, Liz, Emily, Mark & John). Three others were kind enough to pick the fundraising only option (Michele, Stacey and the CSA Support Group leader - Pat Berger). At this time, we have raised $385 for Camp Kanata! We have also raised $615 for the Komen Race for the Cure - 2 excellent causes! Congrats Team.

We will be meeting at 830am in the parking lot of the Burger King located on 3701 Hillsborough Street. This location is very close to the start/finish line for the Komen Race located near Meredith College. Let's all get together and walk in a group with our red Gluten Free T-shirts and help raise awareness for Celiac Disease and the Gluten Free Diet.

I'll be in the BK parking lot at 830a with the following items...

Komen T-shirt
Komen Race Plackard w/ Race #
Gluten Free Raleigh T-shirt

If you need your items before the race, please email me and I'll try to make arrangements to get them to you - I did not ship these items to you in an attempt to maximize the donation to GIG & Camp Kanata.

I will also have a few extra Gluten Free T-shirts available for those who did not sign up for the team or have found this information after the deadline to sign up. The T-shirts can be purchased for a $20 donation to GIG (cash only). You must register for the Komen Race separately (can do this on Race day) and I will not have your Komen items (you must pick them up yourselves).

I have not made any arrangements to have any special Gluten Free food items available after the race but I know in years past there have been plenty of GF items out there including Yoplait yogurt and fruit. Also, last year, the Whole Foods tent had GF energy bars (LaraBar I believe) in several varieties. FYI - I'm not the biggest Burger King fan, but here is their allergen menu - looks like you can get fries (supposed to be in a dedicated fryer - please double check) and the Tendergrill chicken salad.

Thanks to all who have supported this effort. I greatly appreciate it and I know the campers at Gluten Free week will also!

Gluten Free Raleigh

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Tuesday, June 9, 2009

June 13th Run/Walk Fundraiser Update

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