Gluten Free Raleigh: Recap: Gluten Free Raleigh Run/Walk Fundraiser

Fundraising History

As of Dec 3, 2010
1) Jules Shepard Gluten Free Cooking Class - 2/28/2009 $100 donated to the University of Maryland Center for Celiac Research $400 donated to the National Foundation for Celiac Awareness (NFCA)

2) Gluten Free Raleigh Run/Walk Fundraiser - 6/13/2009 $915 donated to Gluten Free Week 2009 @ Camp Kanata (GIG sponsored camp in Wake Forest)

3) Jules Shepard Gluten Free Cooking Class - 7/12/2009 $300 donated to the University of Maryland Center for Celiac Research

4) GF 101 Class @ Rosie's Plate - 10/3/2009 $175 donated to Gluten Free Week 2010 @ Camp Kanata (GIG sponsored camp in Wake Forest)

5) GF 101 Class @ Rosie's Plate - 1/23/2010 $100 donated to Gluten Free Week 2010 @ Camp Kanata (GIG sponsored camp in Wake Forest)

6) GF 101 Class @ Rosie's Plate - 4/24/2010 $85 donated to Gluten Free Week 2010 @ Camp Kanata (GIG sponsored camp in Wake Forest)

7) Gluten Free Food Drive to benefit The Food Bank of Central & Eastern NC - May 2010 $925

8) GF 101 Class @ Whole Foods - 10/23/2010 $82.50 donated to Gluten Free Week 2011 @ Camp Kanata (GIG sponsored camp in Wake Forest)

Grand Total = $3,082.50

Celiac Disease Stats

16,860 Triangle residents with Celiac Disease
1 out of every 133 Americans (about 3 million people or 1% of population) has Celiac Disease.
97% of Americans estimated to have CD are not diagnosed.
CD has over 300 known symptoms although some people experience none.
Age of diagnosis is key: If you are diagnosed between age 2-4, your chance of getting an additional autoimmune disorder is 10.5%. Over the age of 20, that rockets up to 34%.
30% of the US population is estimated to have the genes necessary for CD.
2.5 babies are born every minute in the USA with the genetic makeup to have CD.
There are 15 states in the US with populations less than the total number of Celiacs in the US.
CD affects more people in the US than Crohn’s Disease, Cystic Fibrosis, Multiple Sclerosis and Parkinson’s disease combined.
500,000 new Celiac diagnoses are expected to occur in the US by 2012 -- thanks to efforts to raise public awareness of the disease.
People with CD dine out 80% less than they used to before diagnosis and believe less than 10% of eating establishments have a 'very good' or 'good' understanding of GF diets.
It takes an average of 11 years for patients to be properly diagnosed with CD even though a simple blood test exists.
The average cost of misdiagnosis is $5,000 - $12,000 per person per year. Improving the time to diagnosis could save the health care system millions of dollars annually in unnecessary medical care.
A recent study by Packaged Facts projects that the sales of GF food will reach $2.63 Billion by 2012. The GF market is also projected to hit $5 Billion by 2015.
GF foods are, on average, 242% more expensive then their non-GF counterparts.
The smallest amount of gluten which has been shown by a biopsy to cause damage to a Celiac is 0.1 gram per day - or 1/48th of a slice of bread.
The Food Allergen Labeling & Consumer Protection Act became law in 2006 allowing for easier reading of food labels for those with CD but the law only requires labeling of wheat. Nearly 5 years later, the FDA still has not finalized what it means to label a product Gluten Free.
12% of people in the US who have Down Syndrome also have CD.
8% of people in the US who have Type 1 Diabetes also have CD.
Among people who have a first-degree relative diagnosed with Celiac, as many as 1 in 22 people may have the disease. First degree relatives should be tested yearly for CD even if previous tests were negative.
There are currently 0 drugs available to treat CD.

Monday, June 15, 2009

Recap: Gluten Free Raleigh Run/Walk Fundraiser

A huge, huge THANK YOU to everyone that participated, helped or donated funds to the 1st ever Gluten Free Raleigh Run/Walk Fundraiser held this past Saturday, 6/13.

I am proud to announce that the fundraiser collected $915 and that 100% of that is being donated to the Gluten Intolerance Group to fund Gluten Free Week at Camp Kanata in Wake Forest, NC. This year's camp runs from June 21 - 27. I have received word that the following local companies are helping out with the camp in addition to the money raised by Gluten Free Raleigh - thanks to you guys for your support.

Bella Monica Flatbread Company will be donating Gluten Free Pizzas - thanks Trevor
Rosie's Plate will be donating Gluten Free cookies - thanks Rose
Twin Cakes Bakery will be donating various Gluten Free baked goods - thanks Michelle and Lori
Jules Shepard of Jules Gluten Free will be donating Gluten Free graham cracker mixes so the kids can enjoy s'mores - thanks Jules.
Gluten Free Raleigh will also be donating Gluten Free wristbands (like Live Strong) and plans on coming up to camp to meet the kids and volunteers.

See below for pictures from the event.

2 comments:

Debbie Jongkind,RD,LDN said...: Great Job Zach and GF team! To note we also receive a wonderful donation from Lee Tobin at the Whole Foods Bake House as well as some local grocery stores such as Kroger, Harris Teeter and Trader Joes. There are numerous other GF companies that are sending us the much needed gluten free products and ingredients to provide a week of gluten free foods. Looking forward to camp! Thank you for your donations!; June 15, 2009 at 2:54 PM
Emily said...: woo hoo!; June 15, 2009 at 6:16 PM

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Monday, June 15, 2009

Recap: Gluten Free Raleigh Run/Walk Fundraiser

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