Gluten Free Raleigh: Gluten Free Raleigh Dispatch: 8-11-2009

Fundraising History

As of Dec 3, 2010
1) Jules Shepard Gluten Free Cooking Class - 2/28/2009 $100 donated to the University of Maryland Center for Celiac Research $400 donated to the National Foundation for Celiac Awareness (NFCA)

2) Gluten Free Raleigh Run/Walk Fundraiser - 6/13/2009 $915 donated to Gluten Free Week 2009 @ Camp Kanata (GIG sponsored camp in Wake Forest)

3) Jules Shepard Gluten Free Cooking Class - 7/12/2009 $300 donated to the University of Maryland Center for Celiac Research

4) GF 101 Class @ Rosie's Plate - 10/3/2009 $175 donated to Gluten Free Week 2010 @ Camp Kanata (GIG sponsored camp in Wake Forest)

5) GF 101 Class @ Rosie's Plate - 1/23/2010 $100 donated to Gluten Free Week 2010 @ Camp Kanata (GIG sponsored camp in Wake Forest)

6) GF 101 Class @ Rosie's Plate - 4/24/2010 $85 donated to Gluten Free Week 2010 @ Camp Kanata (GIG sponsored camp in Wake Forest)

7) Gluten Free Food Drive to benefit The Food Bank of Central & Eastern NC - May 2010 $925

8) GF 101 Class @ Whole Foods - 10/23/2010 $82.50 donated to Gluten Free Week 2011 @ Camp Kanata (GIG sponsored camp in Wake Forest)

Grand Total = $3,082.50

Celiac Disease Stats

16,860 Triangle residents with Celiac Disease
1 out of every 133 Americans (about 3 million people or 1% of population) has Celiac Disease.
97% of Americans estimated to have CD are not diagnosed.
CD has over 300 known symptoms although some people experience none.
Age of diagnosis is key: If you are diagnosed between age 2-4, your chance of getting an additional autoimmune disorder is 10.5%. Over the age of 20, that rockets up to 34%.
30% of the US population is estimated to have the genes necessary for CD.
2.5 babies are born every minute in the USA with the genetic makeup to have CD.
There are 15 states in the US with populations less than the total number of Celiacs in the US.
CD affects more people in the US than Crohn’s Disease, Cystic Fibrosis, Multiple Sclerosis and Parkinson’s disease combined.
500,000 new Celiac diagnoses are expected to occur in the US by 2012 -- thanks to efforts to raise public awareness of the disease.
People with CD dine out 80% less than they used to before diagnosis and believe less than 10% of eating establishments have a 'very good' or 'good' understanding of GF diets.
It takes an average of 11 years for patients to be properly diagnosed with CD even though a simple blood test exists.
The average cost of misdiagnosis is $5,000 - $12,000 per person per year. Improving the time to diagnosis could save the health care system millions of dollars annually in unnecessary medical care.
A recent study by Packaged Facts projects that the sales of GF food will reach $2.63 Billion by 2012. The GF market is also projected to hit $5 Billion by 2015.
GF foods are, on average, 242% more expensive then their non-GF counterparts.
The smallest amount of gluten which has been shown by a biopsy to cause damage to a Celiac is 0.1 gram per day - or 1/48th of a slice of bread.
The Food Allergen Labeling & Consumer Protection Act became law in 2006 allowing for easier reading of food labels for those with CD but the law only requires labeling of wheat. Nearly 5 years later, the FDA still has not finalized what it means to label a product Gluten Free.
12% of people in the US who have Down Syndrome also have CD.
8% of people in the US who have Type 1 Diabetes also have CD.
Among people who have a first-degree relative diagnosed with Celiac, as many as 1 in 22 people may have the disease. First degree relatives should be tested yearly for CD even if previous tests were negative.
There are currently 0 drugs available to treat CD.

Tuesday, August 11, 2009

Gluten Free Raleigh Dispatch: 8-11-2009

Betty Crocker Gluten Free Baking Mixes Coupon @ BeFreeForMe.com
B ig list of Gluten Free Cookbook Reviews from Nancy Lapid's About.com Celiac Disease blog. Unfortunately, Nancy leaves out Jules Shepard. Also, check the Gluten Free Greenie review of Gluten Free Everyday cookbook here.
The Celiac Princess' review of Bella Monica Gluten Free pizza.
Big news from MLB's Colorado Rockies with the first Gluten Free concession stand! Check out this great review from CeliacChicks. Thanks to Aramark - hopefully we will see this trend continue.
Mike over at Switch2GlutenFree has compiled a huge list of Celiac Disease statistics (many of which are quoted from Gluten Free Raleigh - check out all the little # 6s). FYI - Check out Mike's cool GF LiveStrong-like wristbands. I've got one on right now. I have also given over 60 of these away at past GFR events.
Check out some new items now available from Twin Cakes Bakery (located here in Raleigh). I've tried the soft pretzels and they are YUMMY!
Since it is 100+ degrees lately here in NC, you might be interested in some Gluten Free sunscreen. Check out Triumph Dining's Blog here. Important for those of you who lick your fingers after applying sunscreen (just kidding) or if you have DH.
Check out this extensive Gluten Free Fast Food Listing from Gluten Free Greenie. I've updated my own listing here with some of this info (This listing can always be found on the right side-bar under Useful Resources). Good stuff Wendy!

1 comments:

David Hylton said...: Thanks for posting the link to BeFree. unfortunaletly, BC ran out of coupons a week ago due to overwhelming response. But they will take your information and put you on a mailing list for new GF products; August 12, 2009 at 12:06 PM

Gluten Free Raleigh

Welcome

Subscribe

Contact

Health Network

Local Support Groups

NFCA GREAT Guide

Sponsored Links

Fundraising History

Celiac Disease Stats

Blog Archive

Restaurant Survey

Pages

Tuesday, August 11, 2009

Gluten Free Raleigh Dispatch: 8-11-2009

1 comments:

Post a Comment

Search This Blog

NC vs GSP Lawsuit

Food Allergy Poster

Useful Resources

Hot Topics

Popular Posts

Recent Comments