Gluten Free Raleigh: Gluten Free Raleigh Dispatch: 8-25-2009

Fundraising History

As of Dec 3, 2010
1) Jules Shepard Gluten Free Cooking Class - 2/28/2009 $100 donated to the University of Maryland Center for Celiac Research $400 donated to the National Foundation for Celiac Awareness (NFCA)

2) Gluten Free Raleigh Run/Walk Fundraiser - 6/13/2009 $915 donated to Gluten Free Week 2009 @ Camp Kanata (GIG sponsored camp in Wake Forest)

3) Jules Shepard Gluten Free Cooking Class - 7/12/2009 $300 donated to the University of Maryland Center for Celiac Research

4) GF 101 Class @ Rosie's Plate - 10/3/2009 $175 donated to Gluten Free Week 2010 @ Camp Kanata (GIG sponsored camp in Wake Forest)

5) GF 101 Class @ Rosie's Plate - 1/23/2010 $100 donated to Gluten Free Week 2010 @ Camp Kanata (GIG sponsored camp in Wake Forest)

6) GF 101 Class @ Rosie's Plate - 4/24/2010 $85 donated to Gluten Free Week 2010 @ Camp Kanata (GIG sponsored camp in Wake Forest)

7) Gluten Free Food Drive to benefit The Food Bank of Central & Eastern NC - May 2010 $925

8) GF 101 Class @ Whole Foods - 10/23/2010 $82.50 donated to Gluten Free Week 2011 @ Camp Kanata (GIG sponsored camp in Wake Forest)

Grand Total = $3,082.50

Celiac Disease Stats

16,860 Triangle residents with Celiac Disease
1 out of every 133 Americans (about 3 million people or 1% of population) has Celiac Disease.
97% of Americans estimated to have CD are not diagnosed.
CD has over 300 known symptoms although some people experience none.
Age of diagnosis is key: If you are diagnosed between age 2-4, your chance of getting an additional autoimmune disorder is 10.5%. Over the age of 20, that rockets up to 34%.
30% of the US population is estimated to have the genes necessary for CD.
2.5 babies are born every minute in the USA with the genetic makeup to have CD.
There are 15 states in the US with populations less than the total number of Celiacs in the US.
CD affects more people in the US than Crohn’s Disease, Cystic Fibrosis, Multiple Sclerosis and Parkinson’s disease combined.
500,000 new Celiac diagnoses are expected to occur in the US by 2012 -- thanks to efforts to raise public awareness of the disease.
People with CD dine out 80% less than they used to before diagnosis and believe less than 10% of eating establishments have a 'very good' or 'good' understanding of GF diets.
It takes an average of 11 years for patients to be properly diagnosed with CD even though a simple blood test exists.
The average cost of misdiagnosis is $5,000 - $12,000 per person per year. Improving the time to diagnosis could save the health care system millions of dollars annually in unnecessary medical care.
A recent study by Packaged Facts projects that the sales of GF food will reach $2.63 Billion by 2012. The GF market is also projected to hit $5 Billion by 2015.
GF foods are, on average, 242% more expensive then their non-GF counterparts.
The smallest amount of gluten which has been shown by a biopsy to cause damage to a Celiac is 0.1 gram per day - or 1/48th of a slice of bread.
The Food Allergen Labeling & Consumer Protection Act became law in 2006 allowing for easier reading of food labels for those with CD but the law only requires labeling of wheat. Nearly 5 years later, the FDA still has not finalized what it means to label a product Gluten Free.
12% of people in the US who have Down Syndrome also have CD.
8% of people in the US who have Type 1 Diabetes also have CD.
Among people who have a first-degree relative diagnosed with Celiac, as many as 1 in 22 people may have the disease. First degree relatives should be tested yearly for CD even if previous tests were negative.
There are currently 0 drugs available to treat CD.

Tuesday, August 25, 2009

Gluten Free Raleigh Dispatch: 8-25-2009

Alvine Pharmaceuticals initiated patient enrollment in a Phase 2a trial for ALV003. 110 Celiac Disease patients will get ALV003 daily to determine patient benefits and the safety of the drug for use in treating Celiac. I've previously written about this drug and others.
Check out this great post from Nancy Lapid about staying Gluten Free at hotels.
Here is another from Nancy detailing useful back to school tips. Also, some more great back to school tips from Sure Foods Living.
University of Chicago's Celiac Disease Center is hosting it's annual Celiac Disease screening on October 10th in Chicago, IL. Wouldn't it be great to have something like that here?
Another back-to-school themed topic, any Gluten Free students out there attending a Triangle area university having a situation like this? Please let me know via email.
Great Celiac.com article about how gluten can affect your adrenal glands. Check this out if you have been Gluten Free for awhile but are still not feeling 100%.
Another Celiac.com article which shows the results of a recent study about the use of Anti-tissue Transglutaminase Antibodies in assessing successful management of Celiac Disease. The study finds that getting these anti-tTG antibodies measured as part of your long-term follow-up is an effective way to determine whether a Celiac patient is successfully staying healthy on a Gluten Free diet.
Check out the Gluten Free Tour of Whole Foods Cary on Aug 26th and a Gluten Free Vendor Fair at Whole Foods Winston-Salem on Aug 29th.
The Gluten Free City Guide has been updated. Please email me if you have any other updates.

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Tuesday, August 25, 2009

Gluten Free Raleigh Dispatch: 8-25-2009

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