Gluten Free Raleigh: Useful Resources: The Sensible Celiac

Fundraising History

As of Dec 3, 2010
1) Jules Shepard Gluten Free Cooking Class - 2/28/2009 $100 donated to the University of Maryland Center for Celiac Research $400 donated to the National Foundation for Celiac Awareness (NFCA)

2) Gluten Free Raleigh Run/Walk Fundraiser - 6/13/2009 $915 donated to Gluten Free Week 2009 @ Camp Kanata (GIG sponsored camp in Wake Forest)

3) Jules Shepard Gluten Free Cooking Class - 7/12/2009 $300 donated to the University of Maryland Center for Celiac Research

4) GF 101 Class @ Rosie's Plate - 10/3/2009 $175 donated to Gluten Free Week 2010 @ Camp Kanata (GIG sponsored camp in Wake Forest)

5) GF 101 Class @ Rosie's Plate - 1/23/2010 $100 donated to Gluten Free Week 2010 @ Camp Kanata (GIG sponsored camp in Wake Forest)

6) GF 101 Class @ Rosie's Plate - 4/24/2010 $85 donated to Gluten Free Week 2010 @ Camp Kanata (GIG sponsored camp in Wake Forest)

7) Gluten Free Food Drive to benefit The Food Bank of Central & Eastern NC - May 2010 $925

8) GF 101 Class @ Whole Foods - 10/23/2010 $82.50 donated to Gluten Free Week 2011 @ Camp Kanata (GIG sponsored camp in Wake Forest)

Grand Total = $3,082.50

Celiac Disease Stats

16,860 Triangle residents with Celiac Disease
1 out of every 133 Americans (about 3 million people or 1% of population) has Celiac Disease.
97% of Americans estimated to have CD are not diagnosed.
CD has over 300 known symptoms although some people experience none.
Age of diagnosis is key: If you are diagnosed between age 2-4, your chance of getting an additional autoimmune disorder is 10.5%. Over the age of 20, that rockets up to 34%.
30% of the US population is estimated to have the genes necessary for CD.
2.5 babies are born every minute in the USA with the genetic makeup to have CD.
There are 15 states in the US with populations less than the total number of Celiacs in the US.
CD affects more people in the US than Crohn’s Disease, Cystic Fibrosis, Multiple Sclerosis and Parkinson’s disease combined.
500,000 new Celiac diagnoses are expected to occur in the US by 2012 -- thanks to efforts to raise public awareness of the disease.
People with CD dine out 80% less than they used to before diagnosis and believe less than 10% of eating establishments have a 'very good' or 'good' understanding of GF diets.
It takes an average of 11 years for patients to be properly diagnosed with CD even though a simple blood test exists.
The average cost of misdiagnosis is $5,000 - $12,000 per person per year. Improving the time to diagnosis could save the health care system millions of dollars annually in unnecessary medical care.
A recent study by Packaged Facts projects that the sales of GF food will reach $2.63 Billion by 2012. The GF market is also projected to hit $5 Billion by 2015.
GF foods are, on average, 242% more expensive then their non-GF counterparts.
The smallest amount of gluten which has been shown by a biopsy to cause damage to a Celiac is 0.1 gram per day - or 1/48th of a slice of bread.
The Food Allergen Labeling & Consumer Protection Act became law in 2006 allowing for easier reading of food labels for those with CD but the law only requires labeling of wheat. Nearly 5 years later, the FDA still has not finalized what it means to label a product Gluten Free.
12% of people in the US who have Down Syndrome also have CD.
8% of people in the US who have Type 1 Diabetes also have CD.
Among people who have a first-degree relative diagnosed with Celiac, as many as 1 in 22 people may have the disease. First degree relatives should be tested yearly for CD even if previous tests were negative.
There are currently 0 drugs available to treat CD.

Tuesday, November 18, 2008

Useful Resources: The Sensible Celiac

Anytime I come across something useful on the Web pertaining to Celiac Disease or being Gluten Free, I like to pass it along to the readers of GFR. I had seen The Sensible Celiac site before when I was first diagnosed over the summer and was reminded of it recently when I received an email from Steve Rider, the owner of the Sensible Celiac site.

Here is a copy of the email which sums up what they do over at The Sensible Celiac...

The Sensible Celiac was founded in May of 2004 with the intention of promoting a scientific, reality-based approach to dealing with Celiac disease.

We seek to promote the use of medical science to understand and inform people affected by Celiac disease, while at the same time debunking disinformation that comes from less scientific sources.

The main feature of our website, SensibleCeliac.com, is a discussion forum. Because of our 30 year background in the computer industry and experience with web hosting we have been able to configure and install certain custom tailored 'bots that search the web for gluten-free recipes and news about Celiac disease, posting summaries of each recipe or news item found in forum boards created for that purpose.

We are tracking 3 pharmaceutical research projects world-wide currently testing possible medical treatments for Celiac disease. Another board in our forum exists just for this medical science information.

To further expand our support for medical science and reality-based thinking we sponsor the Celiac disease news feed at the UK website Medworm.

We also use news aggregation techniques to present a news page, with links to stories about Celiac disease from various sources.

In another area of our website a small PHP script has allowed us to create a web page that includes a default listing of YouTube videos about Celiac disease along with a list of canned searches that will let you locate more specific subjects related to this autoimmune disease and the diet it still requires.

Another feature of the Sensible Celiac is our store, in partnership with Amazon.com, but with search criteria we have very carefully designed to make it much easier to find gluten free food items. You can add various items to your shopping cart at our web site, even GF cookbooks, rice cookers and bread machines, then proceed to Amazon for order fulfillment. Shopping at our store supports our ongoing efforts to help the Celiac community and dispel myth-based thinking about medical care.

Over 300 people have already chosen to join the discussion forum at the Sensible Celiac. Your participation is more than welcome, it would be greatly appreciated. Our very fast and expertly maintained dual-core dedicated web server can easily handle thousands more users.

Here are links directly to the areas of our website mentioned in this message:

Medical Science News:
http://www.sensibleceliac.com/discuss/index.php/board,18.0.html

Automated Celiac News Bot:
http://www.sensibleceliac.com/discuss/index.php/board,16.0.html

Gluten Free Recipe Bot:
http://www.sensibleceliac.com/discuss/index.php/board,6.0.html

Current Celiac News Page:
http://www.sensibleceliac.com/news.php

YouTube Videos Script:
http://www.sensibleceliac.com/videos/index.php

Gluten Free Food:
http://www.sensibleceliac.com/store/

Please accept our invitation to visit the Sensible Celiac today. We hope you will decide to join our community.

Steve Rider
the Sensible Celiac

http://SensibleCeliac.com/
http://AllAboutCeliac.org/
http://MyCeliacBlog.com/
http://TheGFStore.com/

More of our many, many websites about celiac disease:
http://celiacpages.com/
http://celiac.me/
http://glutenfreepro.com/
http://gluten-freestore.com/
http://glutenfreesearch.org/
http://glutenfreelive.com/
http://celiacshop.com/

ENJOY!

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Tuesday, November 18, 2008

Useful Resources: The Sensible Celiac

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