Gluten Free Raleigh: Some Updates

Fundraising History

As of Dec 3, 2010
1) Jules Shepard Gluten Free Cooking Class - 2/28/2009 $100 donated to the University of Maryland Center for Celiac Research $400 donated to the National Foundation for Celiac Awareness (NFCA)

2) Gluten Free Raleigh Run/Walk Fundraiser - 6/13/2009 $915 donated to Gluten Free Week 2009 @ Camp Kanata (GIG sponsored camp in Wake Forest)

3) Jules Shepard Gluten Free Cooking Class - 7/12/2009 $300 donated to the University of Maryland Center for Celiac Research

4) GF 101 Class @ Rosie's Plate - 10/3/2009 $175 donated to Gluten Free Week 2010 @ Camp Kanata (GIG sponsored camp in Wake Forest)

5) GF 101 Class @ Rosie's Plate - 1/23/2010 $100 donated to Gluten Free Week 2010 @ Camp Kanata (GIG sponsored camp in Wake Forest)

6) GF 101 Class @ Rosie's Plate - 4/24/2010 $85 donated to Gluten Free Week 2010 @ Camp Kanata (GIG sponsored camp in Wake Forest)

7) Gluten Free Food Drive to benefit The Food Bank of Central & Eastern NC - May 2010 $925

8) GF 101 Class @ Whole Foods - 10/23/2010 $82.50 donated to Gluten Free Week 2011 @ Camp Kanata (GIG sponsored camp in Wake Forest)

Grand Total = $3,082.50

Celiac Disease Stats

16,860 Triangle residents with Celiac Disease
1 out of every 133 Americans (about 3 million people or 1% of population) has Celiac Disease.
97% of Americans estimated to have CD are not diagnosed.
CD has over 300 known symptoms although some people experience none.
Age of diagnosis is key: If you are diagnosed between age 2-4, your chance of getting an additional autoimmune disorder is 10.5%. Over the age of 20, that rockets up to 34%.
30% of the US population is estimated to have the genes necessary for CD.
2.5 babies are born every minute in the USA with the genetic makeup to have CD.
There are 15 states in the US with populations less than the total number of Celiacs in the US.
CD affects more people in the US than Crohn’s Disease, Cystic Fibrosis, Multiple Sclerosis and Parkinson’s disease combined.
500,000 new Celiac diagnoses are expected to occur in the US by 2012 -- thanks to efforts to raise public awareness of the disease.
People with CD dine out 80% less than they used to before diagnosis and believe less than 10% of eating establishments have a 'very good' or 'good' understanding of GF diets.
It takes an average of 11 years for patients to be properly diagnosed with CD even though a simple blood test exists.
The average cost of misdiagnosis is $5,000 - $12,000 per person per year. Improving the time to diagnosis could save the health care system millions of dollars annually in unnecessary medical care.
A recent study by Packaged Facts projects that the sales of GF food will reach $2.63 Billion by 2012. The GF market is also projected to hit $5 Billion by 2015.
GF foods are, on average, 242% more expensive then their non-GF counterparts.
The smallest amount of gluten which has been shown by a biopsy to cause damage to a Celiac is 0.1 gram per day - or 1/48th of a slice of bread.
The Food Allergen Labeling & Consumer Protection Act became law in 2006 allowing for easier reading of food labels for those with CD but the law only requires labeling of wheat. Nearly 5 years later, the FDA still has not finalized what it means to label a product Gluten Free.
12% of people in the US who have Down Syndrome also have CD.
8% of people in the US who have Type 1 Diabetes also have CD.
Among people who have a first-degree relative diagnosed with Celiac, as many as 1 in 22 people may have the disease. First degree relatives should be tested yearly for CD even if previous tests were negative.
There are currently 0 drugs available to treat CD.

Monday, May 18, 2009

Some Updates

I'm just getting back into the swing of things after going on vacation last week. I wrote some posts ahead of time and scheduled them to publish while I was gone so you probably didn't even notice! I took a trip to Atlantis in the Bahamas and will have a full review of their Gluten Free food options in an upcoming post. Overall, it was a pretty good trip without too much Gluten worry. Atlantis has gone through the NFCA GREAT program!

Also, I have passed the 1 year milestone of my first visit to a doctor for not feeling well which eventually turned into a Celiac diagnosis. I visited my mom on Mother's day last year and she noted how skinny I was - she brought out a scale and I weighed myself only to realize I was about 30 pounds below normal. The weight loss was so gradual that I hadn't really noticed. I don't normally weigh myself either. I'm glad my mom was there to look out for me and help me on my way to feeling better - thanks mom!

Reminder - this is the last full week to sign up for the Gluten Free Raleigh Run/Walk Fundraiser to benefit Gluten Free Week at Camp Kanata. The cutoff to register is next Tuesday, May 26th. If you are interested in signing up, please click here for more information. The link contains information about doing a "fundraising only" option if you cannot participate in the run/walk but would still like to donate to a good cause. I've had several folks sign up this way so far since they will be out of town during the race. At this point, we have raised $240 - about half the goal I initially set of $500. Keep in mind that the camp uses about $500 of Gluten Free food per day! We need only 13 more people to sign up to reach our goal! In addition, Team Gluten Free Raleigh has raised $330 for the Komen Breast Cancer Race for the Cure Event - great job everyone!

Lastly, I should have some great news this week or next about the scope of the Gluten Free North Carolina concept growing in Greenville, Rocky Mount, Fayetteville, Asheville, Wilmington and Winston-Salem. More to come on this and thanks to those of you who have volunteered to do Gluten Free goodness for your city!

I'll have some more Gluten Free posts soon as I get back into the swing of things after my vacation- stay tuned. As always, there is a so much going on in the Gluten Free world.

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Monday, May 18, 2009

Some Updates

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