Gluten Free Raleigh: Jules Shepard Updates

Fundraising History

As of Dec 3, 2010
1) Jules Shepard Gluten Free Cooking Class - 2/28/2009 $100 donated to the University of Maryland Center for Celiac Research $400 donated to the National Foundation for Celiac Awareness (NFCA)

2) Gluten Free Raleigh Run/Walk Fundraiser - 6/13/2009 $915 donated to Gluten Free Week 2009 @ Camp Kanata (GIG sponsored camp in Wake Forest)

3) Jules Shepard Gluten Free Cooking Class - 7/12/2009 $300 donated to the University of Maryland Center for Celiac Research

4) GF 101 Class @ Rosie's Plate - 10/3/2009 $175 donated to Gluten Free Week 2010 @ Camp Kanata (GIG sponsored camp in Wake Forest)

5) GF 101 Class @ Rosie's Plate - 1/23/2010 $100 donated to Gluten Free Week 2010 @ Camp Kanata (GIG sponsored camp in Wake Forest)

6) GF 101 Class @ Rosie's Plate - 4/24/2010 $85 donated to Gluten Free Week 2010 @ Camp Kanata (GIG sponsored camp in Wake Forest)

7) Gluten Free Food Drive to benefit The Food Bank of Central & Eastern NC - May 2010 $925

8) GF 101 Class @ Whole Foods - 10/23/2010 $82.50 donated to Gluten Free Week 2011 @ Camp Kanata (GIG sponsored camp in Wake Forest)

Grand Total = $3,082.50

Celiac Disease Stats

16,860 Triangle residents with Celiac Disease
1 out of every 133 Americans (about 3 million people or 1% of population) has Celiac Disease.
97% of Americans estimated to have CD are not diagnosed.
CD has over 300 known symptoms although some people experience none.
Age of diagnosis is key: If you are diagnosed between age 2-4, your chance of getting an additional autoimmune disorder is 10.5%. Over the age of 20, that rockets up to 34%.
30% of the US population is estimated to have the genes necessary for CD.
2.5 babies are born every minute in the USA with the genetic makeup to have CD.
There are 15 states in the US with populations less than the total number of Celiacs in the US.
CD affects more people in the US than Crohn’s Disease, Cystic Fibrosis, Multiple Sclerosis and Parkinson’s disease combined.
500,000 new Celiac diagnoses are expected to occur in the US by 2012 -- thanks to efforts to raise public awareness of the disease.
People with CD dine out 80% less than they used to before diagnosis and believe less than 10% of eating establishments have a 'very good' or 'good' understanding of GF diets.
It takes an average of 11 years for patients to be properly diagnosed with CD even though a simple blood test exists.
The average cost of misdiagnosis is $5,000 - $12,000 per person per year. Improving the time to diagnosis could save the health care system millions of dollars annually in unnecessary medical care.
A recent study by Packaged Facts projects that the sales of GF food will reach $2.63 Billion by 2012. The GF market is also projected to hit $5 Billion by 2015.
GF foods are, on average, 242% more expensive then their non-GF counterparts.
The smallest amount of gluten which has been shown by a biopsy to cause damage to a Celiac is 0.1 gram per day - or 1/48th of a slice of bread.
The Food Allergen Labeling & Consumer Protection Act became law in 2006 allowing for easier reading of food labels for those with CD but the law only requires labeling of wheat. Nearly 5 years later, the FDA still has not finalized what it means to label a product Gluten Free.
12% of people in the US who have Down Syndrome also have CD.
8% of people in the US who have Type 1 Diabetes also have CD.
Among people who have a first-degree relative diagnosed with Celiac, as many as 1 in 22 people may have the disease. First degree relatives should be tested yearly for CD even if previous tests were negative.
There are currently 0 drugs available to treat CD.

Thursday, April 29, 2010

Jules Shepard Updates

Just wanted to mention a few updates from a Gluten Free Raleigh favorite - Jules Shepard.

Jules released a new free CookiE-book a few days ago (which has now expired). However, for Gluten Free Raleigh readers, the offer has been extended through May 5th. Click this link and enter the coupon code "cookie8" to get your free 18 page e-book featuring 11 Gluten Free cookie recipes. The e-book normally runs $10.
Jules is taking part in a Celiac Disease fund raiser this weekend called "Making Tracks for Celiacs" which benefits the University of Maryland's Center for Celiac Research. During this run/walk, Jules is attempting to raise $3000 and is already halfway to her goal. It's not likely that most of you will be in Baltimore this weekend but you can still donate online to help Jules reach her goal. If any of you have ever had the pleasure to experience a Gluten Free cooking class taught by Jules here in Raleigh, you know she is a great person and is a huge advocate/activist for Celiacs. Now is our turn to repay her for making five trips to Raleigh for cooking classes over the last year or so. Donate online to Jules' team here. This event is in it's 9th year and has raised nearly $2 million towards increasing awareness and supporting research. Definitely a great cause.
Jules is also currently working on finishing up her third book entitled Free for All Cooking. This new recipe book (Jules' third book) will contain 125 recipes that are Gluten Free and can easily be made Allergen-Free. It also features a really extensive substitution guide for common ingredients that you or someone in your family may be allergic too - pretty cool! The book can be pre-ordered right now on Amazon.com and should be available in early October.

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Thursday, April 29, 2010

Jules Shepard Updates

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