Gluten Free Raleigh: Useful Resources: Celiac Disease Articles you can show your Doctor

Fundraising History

As of Dec 3, 2010
1) Jules Shepard Gluten Free Cooking Class - 2/28/2009 $100 donated to the University of Maryland Center for Celiac Research $400 donated to the National Foundation for Celiac Awareness (NFCA)

2) Gluten Free Raleigh Run/Walk Fundraiser - 6/13/2009 $915 donated to Gluten Free Week 2009 @ Camp Kanata (GIG sponsored camp in Wake Forest)

3) Jules Shepard Gluten Free Cooking Class - 7/12/2009 $300 donated to the University of Maryland Center for Celiac Research

4) GF 101 Class @ Rosie's Plate - 10/3/2009 $175 donated to Gluten Free Week 2010 @ Camp Kanata (GIG sponsored camp in Wake Forest)

5) GF 101 Class @ Rosie's Plate - 1/23/2010 $100 donated to Gluten Free Week 2010 @ Camp Kanata (GIG sponsored camp in Wake Forest)

6) GF 101 Class @ Rosie's Plate - 4/24/2010 $85 donated to Gluten Free Week 2010 @ Camp Kanata (GIG sponsored camp in Wake Forest)

7) Gluten Free Food Drive to benefit The Food Bank of Central & Eastern NC - May 2010 $925

8) GF 101 Class @ Whole Foods - 10/23/2010 $82.50 donated to Gluten Free Week 2011 @ Camp Kanata (GIG sponsored camp in Wake Forest)

Grand Total = $3,082.50

Celiac Disease Stats

16,860 Triangle residents with Celiac Disease
1 out of every 133 Americans (about 3 million people or 1% of population) has Celiac Disease.
97% of Americans estimated to have CD are not diagnosed.
CD has over 300 known symptoms although some people experience none.
Age of diagnosis is key: If you are diagnosed between age 2-4, your chance of getting an additional autoimmune disorder is 10.5%. Over the age of 20, that rockets up to 34%.
30% of the US population is estimated to have the genes necessary for CD.
2.5 babies are born every minute in the USA with the genetic makeup to have CD.
There are 15 states in the US with populations less than the total number of Celiacs in the US.
CD affects more people in the US than Crohn’s Disease, Cystic Fibrosis, Multiple Sclerosis and Parkinson’s disease combined.
500,000 new Celiac diagnoses are expected to occur in the US by 2012 -- thanks to efforts to raise public awareness of the disease.
People with CD dine out 80% less than they used to before diagnosis and believe less than 10% of eating establishments have a 'very good' or 'good' understanding of GF diets.
It takes an average of 11 years for patients to be properly diagnosed with CD even though a simple blood test exists.
The average cost of misdiagnosis is $5,000 - $12,000 per person per year. Improving the time to diagnosis could save the health care system millions of dollars annually in unnecessary medical care.
A recent study by Packaged Facts projects that the sales of GF food will reach $2.63 Billion by 2012. The GF market is also projected to hit $5 Billion by 2015.
GF foods are, on average, 242% more expensive then their non-GF counterparts.
The smallest amount of gluten which has been shown by a biopsy to cause damage to a Celiac is 0.1 gram per day - or 1/48th of a slice of bread.
The Food Allergen Labeling & Consumer Protection Act became law in 2006 allowing for easier reading of food labels for those with CD but the law only requires labeling of wheat. Nearly 5 years later, the FDA still has not finalized what it means to label a product Gluten Free.
12% of people in the US who have Down Syndrome also have CD.
8% of people in the US who have Type 1 Diabetes also have CD.
Among people who have a first-degree relative diagnosed with Celiac, as many as 1 in 22 people may have the disease. First degree relatives should be tested yearly for CD even if previous tests were negative.
There are currently 0 drugs available to treat CD.

Thursday, April 23, 2009

Useful Resources: Celiac Disease Articles you can show your Doctor

Do you think you might have Celiac Disease but can't get your doctor to listen to your concerns? Do you think your doctor is not up to speed on the latest Celiac information? Check out this article recently published by Nancy Lapid who is responsible for the Celiac Disease section of About.com.

Here are some articles you can print off or email your doctor to further educate them.

Carlo Catassi and Alessio Fasano. Celiac Disease. Current Opinion in Gastroenterology 2008;24(6):687-691
You can download this article as a PDF file from the website of the Celiac Disease Foundation. Click on “Celiac Disease, Carlo Catassi & Alessio Fasano, Medscape, December 5, 2008”

John S. Leeds, Andrew D. Hopper, and David S. Sanders. Coeliac Disease. British Medical Bulletin 2008 88(1):157-170; doi:10.1093/bmb/ldn044
This article is available as a PDF file or in html on the website of the British Medical Bulletin. You’ll need to register with a user name and password, but there’s no charge.

Peter H.R. Green and Christophe Cellier. Celiac Disease: a Review. New England Journal of Medicine 2007;357:1731-43.
The Canadian Celiac Association has arranged for a PDF file of this article to be available on their website.

Thanks Nancy - great article!

1 comments:

NFCA said...: Another great and useful post. Raising awareness in the medical world is as important as educating the public and food industry. To add to your list of helpful resources, the NFCA has a printable symptoms checklist that might also be useful to bring in while speaking with your doctor. You can find that here. http://www.celiaccentral.org/Do_I_Have_Celiac/; April 27, 2009 at 3:16 PM

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Thursday, April 23, 2009

Useful Resources: Celiac Disease Articles you can show your Doctor

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