Gluten Free Raleigh: Looking into 2009: 20 Goals

Fundraising History

As of Dec 3, 2010
1) Jules Shepard Gluten Free Cooking Class - 2/28/2009 $100 donated to the University of Maryland Center for Celiac Research $400 donated to the National Foundation for Celiac Awareness (NFCA)

2) Gluten Free Raleigh Run/Walk Fundraiser - 6/13/2009 $915 donated to Gluten Free Week 2009 @ Camp Kanata (GIG sponsored camp in Wake Forest)

3) Jules Shepard Gluten Free Cooking Class - 7/12/2009 $300 donated to the University of Maryland Center for Celiac Research

4) GF 101 Class @ Rosie's Plate - 10/3/2009 $175 donated to Gluten Free Week 2010 @ Camp Kanata (GIG sponsored camp in Wake Forest)

5) GF 101 Class @ Rosie's Plate - 1/23/2010 $100 donated to Gluten Free Week 2010 @ Camp Kanata (GIG sponsored camp in Wake Forest)

6) GF 101 Class @ Rosie's Plate - 4/24/2010 $85 donated to Gluten Free Week 2010 @ Camp Kanata (GIG sponsored camp in Wake Forest)

7) Gluten Free Food Drive to benefit The Food Bank of Central & Eastern NC - May 2010 $925

8) GF 101 Class @ Whole Foods - 10/23/2010 $82.50 donated to Gluten Free Week 2011 @ Camp Kanata (GIG sponsored camp in Wake Forest)

Grand Total = $3,082.50

Celiac Disease Stats

16,860 Triangle residents with Celiac Disease
1 out of every 133 Americans (about 3 million people or 1% of population) has Celiac Disease.
97% of Americans estimated to have CD are not diagnosed.
CD has over 300 known symptoms although some people experience none.
Age of diagnosis is key: If you are diagnosed between age 2-4, your chance of getting an additional autoimmune disorder is 10.5%. Over the age of 20, that rockets up to 34%.
30% of the US population is estimated to have the genes necessary for CD.
2.5 babies are born every minute in the USA with the genetic makeup to have CD.
There are 15 states in the US with populations less than the total number of Celiacs in the US.
CD affects more people in the US than Crohn’s Disease, Cystic Fibrosis, Multiple Sclerosis and Parkinson’s disease combined.
500,000 new Celiac diagnoses are expected to occur in the US by 2012 -- thanks to efforts to raise public awareness of the disease.
People with CD dine out 80% less than they used to before diagnosis and believe less than 10% of eating establishments have a 'very good' or 'good' understanding of GF diets.
It takes an average of 11 years for patients to be properly diagnosed with CD even though a simple blood test exists.
The average cost of misdiagnosis is $5,000 - $12,000 per person per year. Improving the time to diagnosis could save the health care system millions of dollars annually in unnecessary medical care.
A recent study by Packaged Facts projects that the sales of GF food will reach $2.63 Billion by 2012. The GF market is also projected to hit $5 Billion by 2015.
GF foods are, on average, 242% more expensive then their non-GF counterparts.
The smallest amount of gluten which has been shown by a biopsy to cause damage to a Celiac is 0.1 gram per day - or 1/48th of a slice of bread.
The Food Allergen Labeling & Consumer Protection Act became law in 2006 allowing for easier reading of food labels for those with CD but the law only requires labeling of wheat. Nearly 5 years later, the FDA still has not finalized what it means to label a product Gluten Free.
12% of people in the US who have Down Syndrome also have CD.
8% of people in the US who have Type 1 Diabetes also have CD.
Among people who have a first-degree relative diagnosed with Celiac, as many as 1 in 22 people may have the disease. First degree relatives should be tested yearly for CD even if previous tests were negative.
There are currently 0 drugs available to treat CD.

Tuesday, December 23, 2008

Looking into 2009: 20 Goals

2008 was a weird year for me mostly spent learning to live with my Celiac Diagnosis in a city that knew very little about Celiac Disease and the Gluten Free diet. I'd like to thank the readers of this blog and the support I have received in comments and emails. I will strive to continue to promote change and awareness in our great city in the future but will need your help along the way. Please keep your ideas, findings and thoughts coming as you experience living Gluten Free in Raleigh.

Over the next few weeks during Christmas vacation, the posts on Gluten Free Raleigh Blog might be a little light. If I find out something important, I will try to post about it.... but until then, I leave you with my plans/thoughts for what is in store for 2009 on the Gluten Free Raleigh Blog.

2009 Plans (in no particular order)

Wake County School System - Gluten Free lunches
Review of National Celiac Organizations
NCSU, UNC & Duke sporting event concessions
UNC University System Cafeteria reviews
Durham Bulls/Carolina Mudcats sporting event concessions
Gluten Free Medications
Gluten Free Tax Deductions/Flexible Spending Accounts
Local Product Spotlights
Local Blogger Spotlights
Raleigh area Hospital Cafeteria/Pharmacy reviews
Gluten Free Raleigh Blog Health Network expansion
Restaurant Reviews/Restaurant Survey
Grocery Store Reviews (Earth Fare, Trader Joe's, Harmony Farms)
Fund raising Activities (run/walk, etc...)
RDU International Airport food options
NC State Fair - more GF Friendly
Celiac Drug Therapy Updates
Useful Resources additions
Hosting/Organizing Cooking Classes/Author discussions
Guest Authors?

AND - Stay tuned in early January for a potentially huge announcement from a local company breaking into the Gluten Free product/restaurant scene! Some final discussions are going on right now and Gluten Free Raleigh Blog has been involved in the process. Much more to come once everything is finalized! I cannot wait to share with you all the great news.

As always, please leave a comment or Email me with questions or topic suggestions if you would like to add an idea.

3 comments:

Curious Art said...: What a great service you are providing! Thanks again so much for all your work & generosity. Have a great holiday, & I can't wait to see what you come up with in '09!; December 24, 2008 at 11:10 AM
Anonymous said...: My computer is lame and won't allow me to email you via your blog so i'm going through the "comment" section to try and contact you. Thanks for all your hard work. I'm curious to know if there's any future plans to include Durham in your "reports", specifically eating out in Durham? Or do you know of any blogs/sites that have a good list of places to eat out at in Durham? You can email me @
turtledupree at hot mail dot com.

Thanks!!; January 3, 2009 at 6:40 PM
Anonymous said...: I was sent a link to your blog today and I am thrilled! All of the information you have compiled is wonderful. Thank you so much.

I was wondering if you have kids in WCPSS? I see you are working on trying to get GF lunches in the school. My daughter will be starting Kindergarten in the fall and I am intending on packing her lunch daily. I feel bad for her that she won't be able occasionally get hot lunch like her friends. If you need help in that arena I would be willing to do what I can. I am already trying to figure out how to make sure all art projects are GF.; January 15, 2009 at 4:00 PM

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Tuesday, December 23, 2008

Looking into 2009: 20 Goals

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