Thursday, March 26, 2009

Useful Resources: Children's Celiac Book

I recently stumbled across some Celiac Disease/Gluten Free information provided by the Bonnie Lynn Mechanic Celiac Disease Clinic at the Children's Hospital of Wisconsin.
The Bonnie Lynn Mechanic Celiac Disease Clinic uses a multidisciplinary approach to treating children and families with celiac disease. The clinic is staffed and led by board-certified pediatric gastroenterologist, Grzegorz W. Telega, MD. The team consists of a pediatric gastroenterologist, nurse and nutritionist.

Each physician partners with a nurse to provide ongoing case management. As education on diet and nutrition is key to managing celiac disease, Elaine Danner, clinical dietitian specialist is an integral part of the care team and a resource for patients diagnosed with celiac disease and their families.

Your child's first visit to the clinic will take about 30 minutes to one hour. The visit will include a physical exam and review of your child's past and present medical history. Please come prepared to discuss your overall family health history. Following the visit, the team may recommend some screening laboratory tests. If the initial screening is positive, a recommendation may be made for future testing to accurately diagnose the disease.
In addition to being a center solely based on diagnosing and treating Celiac Disease, they also have a couple other useful resources. These include a Guide to going Gluten Free, a Celiac Disease survival guide and an illustrated, easy to understand children's book about Celiac Disease.

Guide to going GF

Celiac Survival Guide

The Trouble that Jack Had Children's book

With all the technology, pharmaceutical and bio-tech research places around here, not to mention Duke and UNC hospital systems, why can't the Triangle have a Celiac Disease Center?


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